the message fund below was written by an MS Patient to People Magazine
To:People MagazineAtt:Editorial Letters Dept.Fr: Debbie Serating
I am writing to express my shock and disbelief upon receiving your recent publication referenced above, with the headline screaming " I Won't Let My Son Die."
Sorry,Sharon,it's not up to you. Bad news, your son Jack has been diagnosed with a degenerative and unpredictable autoimmune disease. Good News: It's not an inoperable brain tumor.
It's multiple sclerosis.Yup,MS.So there's hope yet.
I realize that while melodrama sells magazines,it is also People's responsibility to be somewhat factual,and therefore it is a contemptible act of greed and a misconception to display Mrs.Osbourne's obvious lack of knowledge and fear of MS-it's not a fatal disease,but a chronic illness-in such a negative manner.Those unacquainted with MS such as yourselves,celebrities and the entire reading public, will now be misled into thinking that being diagnosed with MS is an unbearable burden,on par with receiving a death sentence.
Bravo to People magazine,for helping to spread Sharon's fear and misinformation about this disease among your readers.As someone who has lived with MS since being diagnosed in 1998(my initial symptoms were almost identical to Jack's,but since his is the remitting/ relapsing version,he will hopefully have a milder,less progressive experience),I know how difficult it is to remain positive and hopeful,so it is disheartening not just to me and my fellow MS sufferers(including my own brother) to witness this lack of sensitivity on your part.(FYI, less than 5% of those initially diagnosed with MS have severe forms of this disease,which may lead to dire complications in the first five years;Jack has the mildest,most benign type of MS,with his temporary loss of vision-- vs.weakness or loss of balance and coordination--a key factor in determining the path of his illness).
Every case is different,everyone is unique.Which is not to say that Jack doesn't face a challenge ahead of him, but at least his will be lifelong,not swift and deadly as his mother,and your publication,would have people believe.
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The NHS has a new model to help deliver change, a critical objective over the months and years as new commissioning arrangements are also implemented. The introduction below is from the website, from where the components of the model are also explained following registration and this is a chat forum:
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